Nov 072017
 

Now we are at the end of writing of the script! It has been a great experience for me to work with amazing scriptwriter Finn O’Branagain. We have been working hard writing and editing the script since July.

Finn is on the left of the picture and Julia on the right. They are on opposite sides of a thin table looking at a computer screen. There are art objects around them and white walls

I am the star of the whole play and acting on stage as Claire Stewart as well. This is making my dreams happen. It’s about the Down syndrome community and Home And Away, and there will be a party with dancing at the end. I have other performers with Down syndrome on stage with me.

I have learned so much researching the history of Down syndrome. It is so interesting finding out about how sad it was for people who were put in institutions, how people with disabilities including Down syndrome were treated, and howthey used to live together in one place – the Fremantle Lunatic Asylum.

I want this play to help people to learn more about Down syndrome’s history, and not to be scared of having babies with Down syndrome, and giving people who have Down sydnrome a great life.

I want all doctors to please give new parents who’ve had the test for their babies with Down syndrome to give them the right information to keep their babies.

Now we are going into the development and putting it on stage for the first time – reading the script and trying it out.

I am very exited to be in The Blue Room for the development. Thank you to the people at The Blue Room for supporting and funding of play, and letting me use the space for workshopping for development.

I have done a play at The Blue Room before – many years ago, for WAAPA. I am looking forward to being there again working on my play next week.

It’s been great working so far in the new building of DADAA WA, The Old Boy’s School in Fremantle. It’s very big and beautiful, with a lot of space for people to work.

Thank you to everyone for your support for this play and working with me to make my dreams happen.

Thank you to the Australia Council, The Black Swan Theatre Company, DADAA, Perth Festival, and Finn O’Branagain, and thank you for setting up for me to meet the cast of Home And Away! It was so exciting.

I’m looking forward to developing the next part of the show.

END

Aug 172017
 

Sally Phillips from the ‘Bridget Jones Diary’ movie is a actress and she was on 60 Minutes on Sunday night. She was talking about her son that has Down syndrome and he is living his life. Sally talked about other women getting a blood test while they are pregnant to see if their baby has Down syndrome.

If the test comes out positive that it is Down syndrome, they need to think if they want to a baby with Down syndrome. If they don’t want it they might have a termination. Sometimes they are scared to raise a baby with Down syndrome because they are worried about how people will treat them, the mother and the baby, and they are worried about how the quality of life the baby will have.

I think parents shouldn’t terminate their baby with Down syndrome. It’s wrong if that’s the only reason you don’t want it. If you did want to have a baby and you got one, you need to love them and raise them as a part of the family and to give them a great life with family and friends and to enjoy life and to be so of proud them no matter what.

It’s not scary to have a baby with Down syndrome. I wish they had better information and could meet someone who would help them. Someone with Down syndrome who can tell them that life is good. I could come in and talk to them and tell them that they can have a great life and not to be scared of their baby. I can talk to them about my life, and how I have Down syndrome and how I live, so they don’t have to be worried about their kids.

I didn’t know Sally Phillips had a son with Down syndrome, I thought she was just an actress. I really like Bridget Jones Diary, I have all 3 DVD movies.

I like her even more now that I know she has got a son with Down syndrome, like me.

Aug 012017
 

Today Finn and I edited the Wikipedia page of the character Gina Austin from Home and Away.

In the storyline section it spoke about Ruby Leeds, played by Tracie Sammut, who was Gina’s son Brendan’s girlfriend. Ruby has Down syndrome and the page referred to her as “a sufferer of Down Syndrome”. We changed the line over to say “a woman who has Down syndrome”.

People who have Down syndrome aren’t “sufferers”. Down syndrome is a part of them.

I want the pages about my favourite TV show Home and Away to be better – to use the right words to describe people who have Down syndrome.

I also think Home and Away is ready to have a recurring character with Down syndrome – me!